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Rare Gynaecological Cancers Are Common

Approximately 18.5 million women annually are affected by gynaecological cancer, of which around 50% are classified as rare cancers.

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Delayed Diagnosis Leads to Poor Outcome

Delayed diagnosis of patients suffering from rare gynaecological cancers leads to poor outcomes and contributes to a huge socio-economic burden.

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Our Mission

GYNOCARE aims to create a unique network between key stakeholders covering five distinct domains (from concept to cure): basic research on rare gynaecological cancer, biobanking, industrial dimension, legal and regulatory requirements for international trials and other research collaborative efforts, and high-quality, international, and innovative clinical trials. To achieve our ambitious goals, we have devised research coordination and capacity building objectives in accordance with mission and vision of the COST Action.

GYNOCARE will focus on (1) capacity-building on rare gynaecological cancer by connecting high-quality scientific communities in various disciplines, existing networks, policy-makers, industrial partners, and patient organisations across Europe and beyond; (2) coordinating, and contributing to the development of a research roadmap dedicated to connect innovative basic research to harmonised biobanking to ‘smarter’ clinical trials; (3) developing a platform for sharing best practices, including funding roadmap and legal/ethical requirements, in gynaecological cancers, aiming to advice policy-makers and other key stakeholders;  and (4) providing equal networking opportunities for early-stage researchers, and other talented young professionals.

Main Contacts

Prof Jean Calleja-Agius

Action Chair

University of Malta,

Malta

jean.calleja-agius@um.edu.mt

Dr Vera Dimitrievska

Science Communication Manager

American College,

North Macedonia

vdimitrievska@gmail.com

Prof David Faraggi

Action Vice Chair

University of Haifa,

Israel

dfaraggi@univ.haifa.ac.il

Dr Maria Santos

STSM Coordinator

Universidade de Lisboa,

Portugal

mariasantos@ff.ulisboa.pt

Dr Federica Ortelli

Science Officer

COST Association,

Brussels

federica.ortelli@cost.eu

Dr Riccardo Di Fiore

ITC Conference Manager

University of Malta,

Malta

riccardo.difiore@um.edu.mt

Ms Aldona Gembalik

Administrative Officer

COST Association,

Brussels

aldona.gembalik@cost.eu

Ms Diandra Borg-Meli

Grants Manager

University of Malta,

Malta

diandra.meli@um.edu.mt

Latest News

Cancer of the Cervix in Bulgaria

23 January 2023 4:11 PM

A new publication following a VM Grant

Clinical Trials involving Rare Gynae Cancers

23 December 2022 4:45 PM

Publication of a Rapid Systematic Review

Sentinel Lymph Node Status in Patients with Endometrial Cancer

02 November 2022 5:23 PM

International Collaboration for a New Publication

Virtual Networking Support Strategy Grant Period 3

02 November 2022 3:07 PM

8 VM grants successfully awarded

STSM in Naples by Czech Researcher

30 October 2022 6:03 PM

Prof Evzen Amler visits Universita' di Campania, Itay

ITC Grant awarded to Present at the 23rd ESGO Congress in Berlin

30 October 2022 5:45 PM

Dr Milan Paul Kubelac presents at the European Society of…

Endometrial Cancer in Young Women

29 October 2022 4:00 PM

New open access collaborative publication

World GO Day 2023

16 September 2022 2:48 PM

20th September is World GO day

2nd STSM grant Awarded

30 August 2022 11:25 AM

Dr Chiara Tommaro visits lab in the UK

Training School and MC meeting in North Macedonia

23 July 2022 7:01 PM

Save the dates: 18-20th September 2022

European Society of Surgical Oncology Webinar on Biobanking

15 July 2022 1:17 PM

Save the date: 21st July 2022

GYNOCARE Reaches for the Moon: Is there a Link between Gynaecological Cancer & Space Travel

05 July 2022 10:19 AM

Extraterrestrial Gynae-Oncology

18.5

million gynae cancer patients

50%

rare gynae cancers

30

countries

70+

professionals

Latest Events

Kick Off Meeting

26th October 2020 00:00 AM

Scientific Session of the 6th Annual Malta Rare Disease Colloquium

28th May 2021 14:00 PM

The Scientific Session of 6th Annual Malta Rare Disease Colloquium was held on…

27th European Congress of Obstetrics and Gynaecology

2nd September 2021 00:00 AM

Oral presentation on GYNOCARE COST Action

Kick Off Meeting

26th October 2020 00:00 AM

Scientific Session of the 6th Annual Malta Rare Disease Colloquium

28th May 2021 14:00 PM

The Scientific Session of 6th Annual Malta Rare Disease Colloquium was held on…

27th European Congress of Obstetrics and Gynaecology

2nd September 2021 00:00 AM

Oral presentation on GYNOCARE COST Action

Kick-off Meeting under newly appointed Action Chairperson

Online meeting held on the 26th October 2020 10:00-12:00hrs

Our Work

Funding available for collaborative open access publications 

Five working groups covering the field of rare gynae cancer: from concept to cure

Patients

Open invitation to representatives of patient support groups 

Clinical Trials

Opportunities for collaboration in innovative multicentre clinical trials

Opportunities for short term scientific missions between COST countries

Legal and ethical requirements for improved  harmonisation of biobanking 

Treatment

Transfer of novel technologies to enhance personalised precision medicine