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Rare Gynaecological Cancers Are Common

Approximately 18.5 million women annually are affected by gynaecological cancer, of which around 50% are classified as rare cancers.

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Delayed Diagnosis Leads to Poor Outcome

Delayed diagnosis of patients suffering from rare gynaecological cancers leads to poor outcomes and contributes to a huge socio-economic burden.

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Our Mission

GYNOCARE aims to create a unique network between key stakeholders covering five distinct domains (from concept to cure): basic research on rare gynaecological cancer, biobanking, industrial dimension, legal and regulatory requirements for international trials and other research collaborative efforts, and high-quality, international, and innovative clinical trials. To achieve our ambitious goals, we have devised research coordination and capacity building objectives in accordance with mission and vision of the COST Action.

GYNOCARE will focus on (1) capacity-building on rare gynaecological cancer by connecting high-quality scientific communities in various disciplines, existing networks, policy-makers, industrial partners, and patient organisations across Europe and beyond; (2) coordinating, and contributing to the development of a research roadmap dedicated to connect innovative basic research to harmonised biobanking to ‘smarter’ clinical trials; (3) developing a platform for sharing best practices, including funding roadmap and legal/ethical requirements, in gynaecological cancers, aiming to advice policy-makers and other key stakeholders;  and (4) providing equal networking opportunities for early-stage researchers, and other talented young professionals.

Main Contacts

Prof Jean Calleja-Agius

Action Chair

University of Malta,

Malta

jean.calleja-agius@um.edu.mt

Dr Vera Dimitrievska

Science Communication Manager

American College,

North Macedonia

vdimitrievska@gmail.com

Prof David Faraggi

Action Vice Chair

University of Haifa,

Israel

dfaraggi@univ.haifa.ac.il

Dr Maria Santos

STSM Coordinator

Universidade de Lisboa,

Portugal

mariasantos@ff.ulisboa.pt

Dr Federica Ortelli

Science Officer

COST Association,

Brussels

federica.ortelli@cost.eu

Dr Riccardo Di Fiore

ITC Conference Manager

University of Malta,

Malta

riccardo.difiore@um.edu.mt

Ms Aldona Gembalik

Administrative Officer

COST Association,

Brussels

aldona.gembalik@cost.eu

Ms Diandra Borg-Meli

Grants Manager

University of Malta,

Malta

diandra.meli@um.edu.mt

Latest News

New Publication on the Role of Long Non-Coding RNAs in Common and Rare Ovarian Cancers

06 November 2021 5:47 AM

Croatian MC GYNOCARE COST members publish collaborative review article

Review article on the Role of Omics in Rare Ovarian Cancers

09 October 2021 11:21 AM

Norwegian MC GYNOCARE COST member publishes new collaborative article

Virtual Mobility Grants

30 August 2021 4:45 PM

Six new Virtual Mobility grants are now available.

New Publication: Link between LncRNA MORT (ZNF667-AS1) and Gynaecological Cancer

22 July 2021 1:22 PM

Long non‑coding RNAs (lncRNAs) play a critical role in tumorigenesis.…

Review article on Human Choriocarcinoma

24 June 2021 11:43 AM

New paper by Di Fiore, R et al. ‘An Overview…

Research paper on Adenosquamous Carcinoma of the Cervix

23 June 2021 9:00 AM

Adenosquamous carcinoma (ASC) is a rare histological subtype of cervical…

6th Annual Malta Rare Disease Colloquium

28 May 2021 2:00 PM

Action Chairperson invited to give a talk to outline the…

ITC Conference Grants

23 April 2021 1:42 PM

Grants are available for participants hailing from ITC countries.

New Publication on the role of MicroRNAs in Rare Gynae Cancers

07 April 2021 8:30 AM

Recent research has revealed the enormous promise of miRNAs for…

Publication of 1st Collaborative Review Article

27 January 2021 10:42 AM

A landmark paper has been published in collaboration with 29…

Kick-off Management Committee Meeting

26 October 2020 10:00 AM

Online meeting held with the newly appointed Action Leads.

New Chairperson appointed

20 August 2020 1:54 PM

Prof. Jean Calleja Agius (https://www.um.edu.mt/profile/jeancallejaagius) from the Department of Anatomy,…

18.5

million gynae cancer patients

50%

rare gynae cancers

30

countries

70+

professionals

Latest Events

Kick-off Management Committee meeting

26th October 2020 10:00 AM

Restart of the work of the GYNOCARE COST Action under new management.

Scientific Session of the 6th Annual Malta Rare Disease Colloquium

28th May 2021 14:00 PM

The Scientific Session of 6th Annual Malta Rare Disease Colloquium was held on…

World Gynaecological Oncology Day

20th September 2021 00:00 AM

The time has come to prepare for the third World Gynaecologic Oncology Awareness…

Kick-off Management Committee meeting

26th October 2020 10:00 AM

Restart of the work of the GYNOCARE COST Action under new management.

Scientific Session of the 6th Annual Malta Rare Disease Colloquium

28th May 2021 14:00 PM

The Scientific Session of 6th Annual Malta Rare Disease Colloquium was held on…

World Gynaecological Oncology Day

20th September 2021 00:00 AM

The time has come to prepare for the third World Gynaecologic Oncology Awareness…

Kick-off Meeting under newly appointed Action Chairperson

Online meeting held on the 26th October 2020 10:00-12:00hrs

Our Work

Funding available for collaborative open access publications 

Five working groups covering the field of rare gynae cancer: from concept to cure

Patients

Open invitation to representatives of patient support groups 

Clinical Trials

Opportunities for collaboration in innovative multicentre clinical trials

Opportunities for short term scientific missions between COST countries

Legal and ethical requirements for improved  harmonisation of biobanking 

Treatment

Transfer of novel technologies to enhance personalised precision medicine