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Rare Gynaecological Cancers Are Common

Approximately 18.5 million women annually are affected by gynaecological cancer, of which around 50% are classified as rare cancers.

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Delayed Diagnosis Leads to Poor Outcome

Delayed diagnosis of patients suffering from rare gynaecological cancers leads to poor outcomes and contributes to a huge socio-economic burden.

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Our Mission

GYNOCARE aims to create a unique network between key stakeholders covering five distinct domains (from concept to cure): basic research on rare gynaecological cancer, biobanking, industrial dimension, legal and regulatory requirements for international trials and other research collaborative efforts, and high-quality, international, and innovative clinical trials. To achieve our ambitious goals, we have devised research coordination and capacity building objectives in accordance with mission and vision of the COST Action.

GYNOCARE will focus on (1) capacity-building on rare gynaecological cancer by connecting high-quality scientific communities in various disciplines, existing networks, policy-makers, industrial partners, and patient organisations across Europe and beyond; (2) coordinating, and contributing to the development of a research roadmap dedicated to connect innovative basic research to harmonised biobanking to ‘smarter’ clinical trials; (3) developing a platform for sharing best practices, including funding roadmap and legal/ethical requirements, in gynaecological cancers, aiming to advice policy-makers and other key stakeholders;  and (4) providing equal networking opportunities for early-stage researchers, and other talented young professionals.

Main Contacts

Prof Jean Calleja-Agius

Action Chair

University of Malta,

Malta

jean.calleja-agius@um.edu.mt

Dr Vera Dimitrievska

Science Communication Manager

American College,

North Macedonia

vdimitrievska@gmail.com

Prof David Faraggi

Action Vice Chair

University of Haifa,

Israel

dfaraggi@univ.haifa.ac.il

Dr Maria Santos

STSM Coordinator

Universidade de Lisboa,

Portugal

mariasantos@ff.ulisboa.pt

Dr Federica Ortelli

Science Officer

COST Association,

Brussels

federica.ortelli@cost.eu

Dr Riccardo Di Fiore

ITC Conference Manager

University of Malta,

Malta

riccardo.difiore@um.edu.mt

Ms Aldona Gembalik

Administrative Officer

COST Association,

Brussels

aldona.gembalik@cost.eu

Ms Diandra Borg-Meli

Grants Manager

University of Malta,

Malta

diandra.meli@um.edu.mt

Latest News

…And That's a Wrap!

10 April 2024 9:25 AM

GYNOCARE COST Action officially ended on the 11th September 2023

Early Career Stage Researchers in GYNOCARE

17 January 2024 6:56 AM

GYNOCARE promotes and supports ECSR

GYNOCARE in India

16 December 2023 4:27 PM

Dissemination by Dr. Yashwanth Subbannayya in Manipal and Mangalore, India

GYNOCARE and Policy Makers

15 December 2023 10:52 AM

Reaching out to politicians and policy makers

Collaborations with other EU funded projects

11 December 2023 10:14 AM

GYNOCARE joins forces with other EU projects

Press Coverage and Public Dissemination

15 October 2023 10:50 AM

Dissemination via international media outlets

Special Issue in EJSO

14 October 2023 10:51 AM

Special Collection dedicated to GYNOCARE in the European Journal of…

Collaborating Patient Advocacy Groups

12 October 2023 12:02 AM

Empowering patients suffering from rare gynaecological cancers

Outcome of meetings with Pharma and Biotech SMEs

11 October 2023 11:52 PM

Outcome of Collaborative Meetings

Dissemination to Pharma & Biotech industries

11 October 2023 11:40 PM

Compilation of Informative Booklet

Informed consent and data safety regulation

11 October 2023 11:27 PM

Common informed consent and harmonized regulations

SOPs involving Biosamples

11 October 2023 11:23 PM

Outcomes of WG2 - Biobanking

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million gynae cancer patients

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rare gynae cancers

0

countries

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professionals

Latest Events

Kick Off Meeting

26th October 2020 00:00 AM

Scientific Session of the 6th Annual Malta Rare Disease Colloquium

28th May 2021 14:00 PM

The Scientific Session of 6th Annual Malta Rare Disease Colloquium was held on…

27th European Congress of Obstetrics and Gynaecology

2nd September 2021 00:00 AM

Oral presentation on GYNOCARE COST Action

Kick Off Meeting

26th October 2020 00:00 AM

Scientific Session of the 6th Annual Malta Rare Disease Colloquium

28th May 2021 14:00 PM

The Scientific Session of 6th Annual Malta Rare Disease Colloquium was held on…

27th European Congress of Obstetrics and Gynaecology

2nd September 2021 00:00 AM

Oral presentation on GYNOCARE COST Action

Kick-off Meeting under newly appointed Action Chairperson

Online meeting held on the 26th October 2020 10:00-12:00hrs

Our Work

Funding available for collaborative open access publications 

Five working groups covering the field of rare gynae cancer: from concept to cure

Patients

Open invitation to representatives of patient support groups 

Clinical Trials

Opportunities for collaboration in innovative multicentre clinical trials

Opportunities for short term scientific missions between COST countries

Legal and ethical requirements for improved  harmonisation of biobanking 

Treatment

Transfer of novel technologies to enhance personalised precision medicine