GYNOCARE is part of a European Collaboration in Science and Technology (COST) with the aim to focus on the development of new approaches to improve the diagnosis and treatment of rare gynecological tumors.
The Memorandum of Understanding describes the goals of this COST Action and its future challenges with the aim to continue fighting against this rare cancer.
Purpose
- Coordination of information gathering on relevant basic/translational research lines and clinical trials within individual workgroups;
- Coordination of common understanding in Gynaecological Rare Cancer research (Strategic lines);
- Coordination of knowledge, best practices and Standard Operating Procedures (SOPs) needed for biobanking;
- Coordination of knowledge needed and creation of SOPs for legal requirements to support international trials in rare cancers;
- Coordination of resource access (i.e. databanks, trial plans) through international collaboration; and
Coordination of knowledge sharing with private enterprises (future market applications). - Coordination of building collaborative model with industry for future market applications.
- Dissemination of GYNOCARE’s outcomes to the relevant stakeholders (including general public, policy makers, regulators, industrial partners etc).
Rare Gynaecological Cancers
The primary challenge is definition of what truly constitutes a rare gynaecological tumour. The GYNOCARE consortium has agreed to focus on the list of rare gynaecological cancers as adapted from the WHO classification of tumors Editoral Board: Female Genital Tumours., IARC 2020 (WHO classification of tumors series, 5th ed.; Volume 4)
The standardization of clinical and histopathological guidelines when defining a rare gynaecological tumour is of paramount relevance both for the diagnosis itself, and for designing clinical trials for testing new therapies. Therefore, for both translational studies and clinical trials, pathology input is crucial to determine the diagnosis, using appropriate diagnostic criteria, including immunohistochemistry and, where appropriate, molecular testing.
Capacity Building
● Bridging separate fields of science to foster knowledge exchange (basic, translational, biobank, clinical trials);
● Connecting hypothesis-generation clusters of major stakeholders around specific research themes (i.e. involving industry, researchers and regulators into the design of research actions);
● Fostering knowledge exchange and development of (joint) research agenda (prioritisation of Strategic
Research lines);
● Fostering knowledge exchange and the development of join best practices for clinical trials and biobanking;
● Connecting the Action to existing and established clinical trial activities; and
● Fostering knowledge exchange and development of a Helpdesk for legal matters related to international trials and data sharing (under the to-be-established legal framework and GDPR).
Vision
GYNOCARE will interact with different stakeholders and also train the current and next generation of early researchers, and professionals by organising training schools, workshops, conferences and short term scientific missions (STSMs),
The quality of research in rare gynaecological cancer will be improved through this COST Action by:
- advancing the state-of-the-art in the field of rare gynaecological cancer;
- developing new less- or non-invasive diagnostic methods for an earlier diagnosis, as well as improving treatment of rare gynaecological cancer;
- increasing the application of nanotechnology both in diagnosis and therapy; and
- developing prospective databases with biobanking.
Click here for more details.
There are five working groups in the GYNOCARE COST Action, each with its own working group leader.
There are 30 participating countries (click here for the full list).
The step-by step instructions on how to join the GYNOCARE COST Action are available here:
How apply to join your Working Groups of interest
In case of any questions, do not hesitate to contact the Action Chair, Prof Jean Calleja-Agius.
Working Group Leaders
Prof C. Simon Herrington
Cancer Research UK Edinburgh Centre, UK simon.herrington@ed.ac.uk
Dr Sharon O'Toole
Trinity St James’s Cancer Institute, Trinity College Dublin, Ireland shotoole@tcd.ie
Dr Olga Tzortzatou
Prof Antonio Giordano
Sbarro Institute, Temple University, USA & University of Siena, Italy giordano12@unisi.it
Dr Klejda Harasani
Active Participants
Name | Country | |
---|---|---|
Klejda Harasani | klejda.harasani@umed.edu.al | Albania |
Cornelia Stumptner | cornelia.stumptner@medunigraz.at | Austria |
Heidelinde Fiegl | Heidelinde.Fiegl@i-med.ac.at | Austria |
Frederic Amant | frederic.amant@uzleuven.be | Belgium |
Tamara Visekruna | tamara.visekruna@kc-bl.com | Bosnia Herzegovina |
Mariela Vasileva-Slaveva | sscvasileva@gmail.com | Bulgaria |
Angel Yordanov | angel.jordanov@gmail.com | Bulgaria |
Maja Sabol | maja.sabol@irb.hr | Croatia |
Mirjana Stanic Benic | mirji.stanic@gmail.com | Croatia |
Petar Ozretić | pozretic@irb.hr | Croatia |
Olga Tzortatou | otzortzatou@bioacademy.gr | Greece |
Kleopatra Alamantariotou | kleopatra_80@hotmail.com | Greece |
Alexandros Daponte | dapontea@otenet.gr | Greece |
Robert Poka | pokar@med.unideb.hu | Hungary |
Sharon O'Toole | shotoole@tcd.ie | Ireland |
Neil Conlon | neil.conlon@dcu.ie | Ireland |
Mark Ward | wardm6@tcd.ie | Ireland |
John O'Leary | olearyjj@tcd.ie | Ireland |
James Beirne | JBeirne@stjames.ie | Ireland |
David Faraggi | dfaraggi@univ.haifa.ac.il | Israel |
Valerio Napolioni | valerio.napolioni@unicam.it | Italy |
Sara Casati | sara.casati@bbmri-eric.eu | Italy |
Antonio Giordano | president@shro.org | Italy |
Francesca Pentimalli | francesca.pentimalli@gmail.com | Italy |
Myriam Perrone | myriam.perrone@aosp.bo.it | Italy |
Gloria Ravegnini | gloria.ravegnini2@unibo.it | Italy |
Eugenia De Crescenzo | eugenia.decrescenzo@gmail.com | Italy |
Pier Andrea Deiaco | pierandrea.deiaco@unibo.it | Italy |
Silvana Urru | silvanaurru@gmail.com | Italy |
Jean Calleja-Agius | jean.calleja-agius@um.edu.mt | Malta |
Riccardo Di Fiore | riccardo.difiore@um.edu.mt | Malta |
Sherif Suleiman | sherif.s.suleiman@um.edu.mt | Malta |
Mark Brincat | mark.brincat18@gmail.com | Malta |
Ian Said Huntingford | Ian.shuntingford@gmail.com | Malta |
Rachel Micallef | rachel.a.micallef@gov.mt | Malta |
Kristel vonBrockdorff | kristel-marie.von-brockdorff@gov.mt | Malta |
Yves MuscatBaron | yves.muscat.baron@gov.mt | Malta |
Miriam Dalmas | miriam.dalmas@gov.mt | Malta |
Latasha Barbara | latasha.barbara.17@um.edu.mt | Malta |
Rita Micallef | rita.t.micallef@gov.mt | Malta |
Bridget Ellul | bridget.ellul@um.edu.mt | Malta |
Alex Felice | alex.felice@um.edu.mt | Malta |
Joanna Vella | joanna.vella@um.edu.mt | Malta |
Charles Savona Ventura | charles.savona-ventura@um.edu.mt | Malta |
Miriam Azzopardi | miriam.j.azzopardi@gov.mt | Malta |
Lidia Ryabova | lidia.ryabova@um.edu.mt | Malta |
Jantess Calleja | jantess.calleja.12@um.edu.mt | Malta |
Apos Sarivalasis | apostolos.sarivalasis@chuv.ch | Malta |
Vera Dimitrievska | vdimitrievska@gmail.com | North Macedonia |
Babak Asadi A | babak.asadi@vid.no | Norway |
Yashwanth Subbannayya | yashwanth.subbannayya@ntnu.no | Norway |
Maria Santos | mariasantos@ff.ulisboa.pt | Portugal |
AnaMaria Felix de Campos Pinto | ana.felix@nms.unl.pt | Portugal |
Nuno Martins | nunonogm@gmail.com | Portugal |
Paul Kubelac | paulkubelac@yahoo.com | Romania |
Catalin Vlad | catalinvlad@yahoo.it | Romania |
Patrick Achimas | patrick.achimas@hotmail.com | Romania |
Danica Cujic | danicac@inep.co.rs | Serbia |
Kristina Drusany Staric | tinaobgyn@yahoo.com | Slovenia |
Vita Andrea Mesaric | vita-andreja.mesaric@mf.uni-lj.si | Slovenia |
David Llobet-Navas | dllobet@idibell.cat | Spain |
Jose José Palacios Calvo | jose.palacios@salud.madrid.org | Spain |
Aymara Mas | amas@incliva.es | Spain |
Isabel Maria Gonzalez Cruz | ismar89@gmail.com | Spain |
Ghanam Khatib | ghanim.khatib@gmail.com | Turkey |
Gözde Yalcin | gozde.yalcin@erdogan.edu.tr | Turkey |
Ilker Kahramanoglu | ilkerkahramanoglu@gmail.com | Turkey |
Sureyya Ozcan | sozcan@metu.edu.tr | Turkey |
Serbulent Unsal | serbulentu@gmail.com | Turkey |
A. Elif Erson | erson@metu.edu.tr | Turkey |
Nicholas Reed | nicksreed@aol.com | UK |
Simon Herrington | simon.herrington@ed.ac.uk | UK |
Marcia Hall | marcia.hall@nhs.net | UK |